Thursday, March 17, 2016

You Are Not Alone! 
Listed below are a few websites that can help guide parents of children diagnosed with Gastroschisis to a healthy network of support.

Avery's Angels 
This is a very popular and well known organization in the Gastroschisis world. It provides resources, programs, support meetings, fundraisers and events for those affected by Gastroschisis. You can volunteer, sign up as a member or even work for the organization as a paid employee! There are many ways to get involved, and Avery's Angels is working toward raising awareness for everyone affected by Gastroschisis.

http://averysangels.org

Gastroschisis: Help Resources and Member Contributed Stories
This website offers the chance to parents of children with Gastroschisis and even grown children who had gastroschisis an opportunity to be apart of something. You can sign up to be a member and share your stories as if it were a blog. However, the great thing about this website is by signing up to be a member you have access to many helpful Gastroschisis resources and support networks.

http://www.gastroschisis.co.uk

News Moms Need: What moms and moms-to-be need to know
This blog is open to all new moms or those who are expecting a new baby. You can discuss any topic and connect with other moms that are going through similar medical experiences as you are. It is an open forum where moms can feel safe and share the struggles, worries, fear and many other emotions that they may be experiencing.

http://newsmomsneed.marchofdimes.org/?p=14333

Facebook! 
Surprisingly, there are many support groups that you can join on Facebook! It is a great resource because it allows you to share photos and videos as well as written posts. You can connect fast with others from all over the world! There are endless amounts of Facebook pages that you can explore or you can start your own Facebook for Gastroschisis and share you journey with others.

Facebook.com (search gastroschisis)


Sunday, March 13, 2016



Helpful Apps For Moms
With the ever growing advances in technology it is becoming easier and easier for many people to learn and connect with almost anything. New moms can take advantage of the vast amount of applications that are easily downloaded to any smart phone. Highlighted below are a few apps that would be especially helpful for moms with babies that have been diagnosed with Gastroschisis. 

  Baby center is a simple app that can help a pregnant mother keep track of her      developing child. It provides week by week tips and trackers through resources like videos, new mommy essentials, product reviews, calendars, community forums and much more. It is the ultimate guide to pregnancy and offers a lot of great information throughout the course of your pregnancy. 

      Baby bump is a similar app to Baby Center but provides more of a community based forum where moms with Gastroschisis babies can connect and talk with other moms going through similar situations. It is very important to be able to connect with others and provide feedback and advice for those who are going through the same hardships. 

PubMed is a very informational app that can provide mothers with education on the the diagnosis of Gastroschisis. It includes the treatment, recovery, prognosis, pathophysiology, medications and much more helpful information.

This another app that can be very helpful in providing valuable information about Gastroschisis. Including the diagnosis, treatment, diet, recovery and much more! 

http://whatisgastroschisis.weebly.com/apps.html

Saturday, March 5, 2016

Support and Information For Parents of Children Diagnosed With Gastroschisis
  1. Avery's Angels Gastroschisis Foundation: http://averysangels.org/averys-story
This foundation is an amazing recourse for parents and families that have babies with Gastroschisis. It was founded by a family who themselves had a child with Gastroschisis. Unfortunately, their son Avery did not make it. However, they explained how wonderful it was to have a solid support system that was always there for them in their time of need and wanted others to experience the same help. Avery's Angels is a foundation built to help educate and support those who are experiencing the trials of having a child with Gastroschisis. They offer programs to raise awareness for Gastroschisis, while raising funds both nationally and internationally for families affected by this disorder.  


2. Gastroschisis Help Resources and Member Contributed:
    Stories:http://www.gastroschisis.co.uk

This help center is great for everyone that has dealt with the effects Gastroschisis can have on families and those diagnosed. It is an open blog in which you may become a member. Those who visit this site can write and talk about anything relating to Gastroschisis. You can talk with other people who have experienced situations similar to yours regarding Gastroschisis. It has often been used by children who have survived treatment and repair of Gastroschisis, who may be experiencing complications since. It is a very good resource for those who have many questions and want to connect with others who are going through or have gone through similar complications. 

3. Band Back Together: http://www.bandbacktogether.com/gastroschisis-resources/

This website is a one stop shop if you're looking for a variety of resources that may help with a Gastroschisis diagnosis. A few of the resources listed include: 
  • Baby loss resources
  • Birth defects resources
  • NICU resources 
  • Life After the NICU
  • Specialty needs parenting resources 
  • Pregnancy resources 
4. CDC: http://www.cdc.gov/ncbddd/birthdefects/gastroschisis.html

The CDC provides the most up-to-date information and treatments for those with Gastroschisis. It includes the signs and symptoms, assessment, diagnosis, occurrence, risk factors, treatment and emotional support. I would recommend this for the most accurate scientific information regarding this disorder.

Resources 
http://www.cdc.gov/media/releases/2016/p0121-birth-defect.html
http://www.bandbacktogether.com/gastroschisis-resources/
http://www.gastroschisis.co.uk
http://averysangels.org/averys-story